MISSION AND VISION
PATIENT ENGAGEMENT IS IN OUR DNA
Our Vision: A world where healthcare decisions are shaped by the insights and involvement of empowered patient communities, transforming patient outcomes.
Our Mission: To strengthen patient engagement, we create and deliver services and solutions to any stakeholder in the healthcare field.
Through strategic collaboration, professional implementation and best-in-class tools, we help organisations embed effective patient engagement frameworks, creating lasting impact for patients, healthcare systems and society.
THE PATVOCATES TEAM
WHO WE ARE
AND WHAT WE DO
Patient engagement, when done well, is structured, ethical, collaborative and patient-centred. It goes beyond consultation or symbolic involvement, and requires clear intent, defined roles, appropriate methods, transparency and fair recognition of lived experience.
At Patvocates, we work from recognised principles and emerging standards to support meaningful, responsible and high-quality patient engagement that delivers value for all stakeholders, particularly patients and carers. We are experts in patient engagement, seamlessly translating intent, methods, frameworks and tools into impactful practice. Our extensive experience extends beyond concepts, having actively participated in multi-stakeholder initiatives, collaboration projects, ethics committees, research committees and NGOs for some decades. As initiators and leaders, we have spearheaded various patient engagement initiatives across the globe, spanning research and development, health policy, access and patient advocacy.
We prioritise tangible outcomes for patients and carers, turning passion and words into concrete, impactful initiatives. We deliver our services to patient organisations, non-governmental organisations, academic institutes, research organisations, funding bodies, medical associations and healthcare companies. We offer strategic consultancy, project management, training, mapping, event coordination and communication support. We run secretariats of organisations and programmes, we plan and implement long-term initiatives, campaigns and events, we create toolkits and organise trainings.
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ACHIEVEMENTS
WHAT WE ARE PROUD OF
Excellence in patient engagement: We deliver several patient engagement projects each year, ensuring lived experience and patient insights inform strategies, materials and decisions. Our work spans advisory structures, co-creation, community mapping and research-enabled engagement across multiple countries and disease areas.
Empowering non-profits: Our NGO Services team strengthens patient organisations across Europe through secretariat support, governance development and long-term organisational guidance. In 2025, we delivered seven academies, forums and training programmes and supported more than eight organisations with strategic, operational and financial development.
Successful fundraising: Through tailored guidance and strategic support, our NGO clients secure funding to advance their initiatives. We strengthen value propositions, support stakeholder engagement and help build long-term partnerships that sustain impact beyond individual projects.
Patient-centric summits: We design and deliver patient summits for industry and NGO partners, bringing together hundreds of participants across Europe in person and online. These events enable cross-stakeholder learning, alignment and collaboration and generate actionable insights for programmes, evidence and policy priorities.
Growing capacity and capabilities: We build capability across patient communities and healthcare partners through training in advocacy, research literacy, clinical research and HTA-relevant evidence. Our work increasingly integrates research-enabled capacity-building to support the generation and use of high-quality evidence.
Community engagement across indications: We work across more than thirty disease areas, including oncology, haematology, rare diseases, respiratory and neurological conditions. Our engagement includes patient pathway research, community mapping, PRO-focused studies and evidence co-creation across Europe.
Advancing patient-centred research: As of 2025, we have delivered or are delivering more than 30 research-driven projects, including patient pathway studies, community mapping and PRO and HTA-relevant evidence generation. This work has informed international congresses and practical tools for patient communities and decision makers, with growing capacity to scale structured evidence models across disease areas.
Digital innovation and AI-enabled capability: We have developed and piloted AI-supported digital tools and delivered AI-readiness training, such as chat interfaces, automated evidence pathways and dynamic dashboards, enabling patient organisations to work with complex information more effectively and adopt digital approaches responsibly in support of evidence-informed patient advocacy.
Strengthening legal, ethical and compliant engagement: We have supported several organisations with legal and compliance expertise across global patient engagement plans, contracting frameworks, governance and data protection. This work has enabled ethical and transparent collaboration between patient organisations and industry across the medicine development lifecycle.
KEY SERVICES
FOR HEALTHCARE
COMPANIES
- Strategic consultancy on patient engagement
- Community mappings
- Patient Advisory Boards and Patient Councils
- Patient Ambassador Programmes
- Patient advocacy summits
- Tailored patient engagement trainings
- Diversity, equity and inclusion
- Legal and Compliance
- Evidence Generation
FOR PATIENT ORGANISATIONS,
NGOS, AND NON-PROFITS
- Strategic consultancy
- Secretariat services
- Lay language conference reports
- Project management
- Patient summits and congresses
- Awareness campaigns and communication
- Educational material and capacity building programmes
- Community Advisory Boards
- Legal and Compliance
- Evidence Generation